Although it might seem that you are searching for answers that no one seems to be able to give you, there are a LOT of resources out there to help. Being a scientist myself, I knew I had to learn everything I could about this disease - for instance, did you know that infertility IS a disease? I didn't. This page will be updated frequently to help ensure that the most up-to-date resources are available to you. Please feel free to contact me if you have suggestions or can provide additional resources.
In the meantime, please visit the RESOLVE website - it's where I started searching for answers.